This SMA Awareness month, Dylan Alcott is calling for fellow trailblazers from the adult SMA community
September 1, 2020
At Biogen, we know that adults living with spinal muscular atrophy (SMA) face debilitating and progressive muscle wastage that can have a significant impact on their day-to-day lives.1,2 To help bring much needed support and seek solutions to the everyday challenges faced by adults living with SMA, Biogen, in collaboration with Paralympian Dylan Alcott and SMA Australia, are launching the first ever Trailblazer Challenge.
We are calling on adults living with SMA to share the everyday challenges they face so that together we can create practical solutions to help make life easier and bring lasting change and support to people living with SMA.
In collaboration with SMA Australia and experts from around Australia, Biogen will host the first ever Trailblazer Challenge in September to help solve one of these challenges that will benefit as many adults living with SMA as possible. Biogen will also look at solutions for smaller challenges outside the Trailblazer Challenge event too. Ultimately, we are looking at solutions that make everyday life easier to ensure adults living with SMA can keep doing those important things to remain independent.
Learn more about the Trailblazer Challenge and how to participate here
Download instructions here on how to film and submit your challenge.
If you are unable to film yourself, need some help or tips or for any questions, please email our communications agency supporting this initiative at firstname.lastname@example.org
The selected challenge will be announced shortly, so stay tuned for more on the hackathon in the coming weeks on SMA Australia and Biogen’s websites and socials.
Thanks for taking part and good luck!
1 Linn CW, Kalb SJ, Yeh WS (2015) Delay in Diagnosis of Spinal Muscular Atrophy: A Systematic Literature Review. Pediatr Neurol. 53(4), pp. 293 – 300. [online] Available at: doi:10.1016/j.pediatrneurol.2015.06.002 [Last accessed 26 May 2020].
2 Wan HWY, Carey KA, D’Silva A et. al (2019) “Getting ready for the adult world”: how adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being. Orphanet Journal of Rare Diseases. Volume (14)74, [online] Available at: https://ojrd.biomedcentral.com/track/pdf/10.1186/s13023-019-1052-2 [Last accessed 20 July 2020]
Learn more about spinal muscular atrophy here